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Tuesday, October 19, 2010

October 2010

Its been a long month, a few things have changed. Donovan is now talking more! It's great. He has a good 30 words! He is considered a sensory seeker. and has sensory issues. we knew this already but it was confirmed when he seen a OT. I am happy to say we are getting better with biting. We have alot of issues to still over come but we are slowly over coming them. He starts school next week! we are so excited and i cant wait. All our work is starting to level out! Life is starting to be come alot easier on us all

Monday, September 13, 2010

Things are going

It's took what feels like along time, but things are finally starting to happen. We have pushed for his doctor to do the hearing test at the hospital just to make sure his little ears are fine. We met his teacher and will start home visits soon. After a few weeks we are going to start classes. We are all excited about this.

It's hard to explain to people that have shown no support. I feel like i have to defend us when we are around them. I feel like I am fighting these "family" members to prove that this is real. So many people don't realize what we are going through.

I have been looking for something to blame, Some reason behind all this. For some reason it has been killing me. Not knowing what causes this. I know its such a mystery in its self. No one can give us a answer to what caused our little boy to be autistic.. Was it shots? Was it the wreck? Is it the foods he eats? Is it something i have done? Who knows?

Now thinking this over and over and trying to play out every step of the past few years in my head I am at lost. I really don't know what has caused it, But now I'm starting to realize, It doesn't matter what caused it, All that matters is I have this little boy that I love more then life and I have to fight for him. I have to fight for his rights. I have to push for his needs I have to be his advocate! And that is what I am.

Monday, August 30, 2010

First few weeks...

The First few weeks have been hell. Who knew one little evaluation would change the way i think, the way i feel, the way i teach and the way i support? Who knew that one little evaluation would change how i would see this world and the people in it. How i would see the people who i thought were family...


Aug 12 2010 Changed my life i was not prepared for what was going to happen that day. I dont think anyone can prepare you for this... A million questions are asked.. By many different people of different standards and different back grounds. They watched they played and we talked... it was determined that my little boy was "eligible" for services. He Failed the M-Chat test... What is this? I remember being in a fog for the first week. I couldnt remember everything they told me... I was in shock, fear, and i hated myself... No one understood this.. Why would i hate myself for this?


You know when you have that baby and your holding him for the first time, you count every finger and toe. you look at him and thank god he was brought to you so perfect.... and he was... he was so perfect... everything about him, Everything you dreamed of... everything you wished for..blonde hair blue eyes... perfect size... heaven...


This is why i hated myself.. he was so perfect.. this monster creeped up on us and hid inside his head... what did i do  to my son to cause this? You know thats the very first thing the doctors told me " mommy you didnt cause this, Dont think you did its hard wired into their little heads" but it still comes up.. could i have done something different? could i have protected him from this?


Life is trying... its very hard... God only knows how many tears i have shed from this.. But at least i finally have a few answers for the questions i have been asking since he was a year old.. Why isn't he talking? why wont he look at me.. I remember the first time i thought that.. I was nursing him and he would not stare at me.. No eye contact.. i felt like he hated me.. Why would my little boy not look me in the eye while i fed him? I tried everything i could think of to get him to look at me.. i wanted that connection so bad.. Not saying he wouldnt look at me at all cause he would.. for a few seconds.. then turn away.. he wouldn't fall asleep staring in my eyes though.. ah that i wish i could have... Still to this day i wish i could lay there and look into his eyes and him into mine and find that little boy that i know is in there some where..


He didnt clap his hands tell he was 15 months.. do u realize how one little thing could set off a million concerns in your brain at once? Just clap i would ask him.. please clap like this and i would show him and he had no interest... I remember the first time he did.. I cried... i waited so long to hear that sound... i was so excited and happy..


So back to current day... he is 25 months and was just diagnosed with autism. He failed his M-chat test ( Modified checklist for autism in toddlers) He failed it 16/23 he failed 5/6 critical. he is close to a year behind on everything.
But we have hope.. I think thats the only thing keeping me going.
What we do next?
we are going to start classes... this will be exciting for us. we are going to have a great time doing this i believe. I realized i would do anything for this little boy. I am putting off my life to do this for him. Not many understand this, This child is my last.. he was my Miracle before he was born...I thought he was gone at 20 weeks and god still gave him to me..


I keep telling myself everyday, That god only gives the special needs children to parents that specially need them. I have been asked what that means.To me it means you weren't hole without this child in your life, You needed this child to change your life, This child has become your life. God only trusts the ones he knows will do perfect by this child, And I am one of those chosen parents